Chronic Fatique Syndrome (17)
Thank you for the information in the book, Invisible Heroes. As a trauma survivor of many years who has worked long and hard to regain my normal life, I have been misunderstood, mis-diagnosed and mis-medicated. My symptoms confused me and made me fear for my sanity. The book explains what I have been experiencing and puts the remaining pieces of the puzzle together, including my chronic fatigue. It also underscores the triumph of what I have achieved in conquering my panic and numbness. I am grateful that the fields of psychiatry and psychology are finally figuring post-traumatic stress out. -M.G.
I have been meditating for 20 years, since going to Benson-Henry's mind/body medicine program here in Boston, MA. It has been invaluable to me, as has been your website and CDs. I have much gratitude to you and all who have mentored me and guided me.
Here is my problem: I seem to have lost the ability to really go into a lovely, meditative state since the Boston attacks last April. I live in Watertown, MA, a few blocks from where the terrorists' gunfight occurred, and was in the midst of the lockdown, etc for those harrowing hours.
Thankfully, no one in my family or community lost lives or limbs, but many of us were affected. For me personally, I came down with a severe case of shingles 1 week later, and then slumped into a nasty, clinical depression and reactivation of PTSD from my childhood.
Researchers from the Wolfson Institute of Preventive Medicine, Barts and The London School of Medicine, Queen Mary University in the UK investigated the effectiveness and safety of four treatments for Chronic Fatigue Syndrome: (1) Specialist Medical Care (SMC) alone, or with (2) Adaptive Pacing Therapy (APT), (3) Cognitive Behavioral Therapy (CBT), or (4) Graded Exercize Therapy (GET).
In a parallel-group randomized trial, patients meeting Oxford criteria for chronic fatigue syndrome were recruited from six secondary-care clinics in the UK and randomly allocated by computer-generated sequence to receive one of the four conditions.
Primary outcomes were fatigue (measured by Chalder fatigue questionnaire score) and physical function (measured by short form-36 subscale score) up to 52 weeks after randomization, and safety was assessed primarily by recording all serious adverse events, including reactions to the trial treatments.
Ed note: This is Diana’s response to BR’s reply to her question, posted here. Clearly this is one plucky dame.
I was just viewing a
Do you remember when AIDS was first discovered? Do you remember the stigma attached to the illness and how that stigma created much more pain and devastation than the physical illness itself (as if it weren't bad enough)? Who can forget, actually? The patients... the disregarded... fought like hell to be recognized and respected, treated and researched. No one ever thought AIDS could be successfully treated or that people could live productive lives after diagnosis.... but how wrong that was!
Investigators from the Chronic Fatigue Center at Radboud University Nijmegen Medical Centre in The Netherlands tested the usefulness of a minimal, cognitive behavioral intervention consisting of guided self-instructions combined with email contact on 171 chronic fatigue patients in a randomized, controlled trial.
Eighty-five were randomized to the intervention condition, and 86 to a wait list control condition. All subjects . met the Centers for Disease Control and Prevention criteria for chronic fatigue syndrome.
I have been reading Your Sixth Sense and listening to some of the related downloads. I wanted to thank you for helping me understand the language of my own inner workings a little bit better. I have been struggling with Lyme Disease and am faced with the decision of IV antibiotics. It's a rough decision b/c I have many allergies, so it may have to take place in the ICU under the watch of medical staff for 5-8 weeks... ugh! Here is what I wrote on my blog tonight:
Researchers from the University of Sheffield in the UK evaluated the effectiveness of homeopathic treatment for reducing the symptoms of Chronic Fatigue Syndrome.
Using a triple-blind design, 103 patients were randomly assigned to homeopathic medicine or an identical placebo condition. Patients had monthly consultations with a professional homeopath for 6 months. Outcomes were measured on the MFI - Multidimensional Fatigue Inventory. Secondary outcome measures were the Fatigue Impact Scale (FIS) and the Functional Limitations Profile (FLP).
Ninety-two patients completed treatment in the trial (47 homeopathic treatment, 45 placebo). Eighty-six patients returned fully or partially completed posttreatment outcome measures (41 homeopathic treatment group who completed treatment, 2 homeopathic treatment group who did not complete treatment, 38 placebo group who completed treatment, and 5 placebo group who did not complete treatment). Seventeen of 103 patients withdrew from treatment or were lost to follow-up.
Cochrane analysts examined five randomized, controlled trials of the efficacy of exercise therapy for Chronic Fatigue Syndrome (CFS) and found that after 12 weeks, those receiving exercise therapy were less fatigued than the control participants (SMD -0.77, 95% CIs -1.26 to -0.28). Additionally, physical functioning was significantly improved with exercise therapy (SMD -0.64, CIs -0.96 to -0.33) but there were more dropouts with exercise therapy (RR 1.73, CIs 0.92 to 3.24).
Just as the person who wrote in, I have been a chronic fatigue sufferer for eight long and lonely years. This is not only distressing due to the chronic pain, exhaustion and interference with the ability to function normally on a daily basis. It is also distressing because people don’t believe there is anything wrong with you and get impatient and angry. For years I had judgmental doctors who hated seeing me in the waiting room because they knew they could not help me and therefore blamed me for being sick, just like you wrote. I was told I was stressed and depressed. That was definitely true, but this was because of my CFS, not what started it!!!!!!!!!!!!